What we do

To provide guidance and social and health care assistance to people affected by EB and their families. To inform, advice and promote the knowledge of the disease within the medical and social fields.
To encourage and finance research projects and spread the advances worldwide.
To promote the exchange of experiences and the mutual support amongst the patients and their families.
To carry out projects in order to improve the patients’ quality of life.
To protect the patients’ rights in the framework of the public system of social security and health care.
To achieve the acknowledgement of the needs for this disease in the public system.
To raise money to finance the activities of the association.

actions

Última Publicación

Boletín nº 3, dic 2011

CALENDARIO OCUPACIÓN HOGAR RESPIRO

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C/ Jacinto Benavente Nº 12 29601 Marbella (Málaga)

Tfno: 952 816 434

FAX: 952 816 434

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