12 Charity Butterflies
Inauguration of new awareness campaign in La Paz Hospital in Madrid
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Video
Anthea Turner fronts DEBRA appeal
Video
Las alas de Lucia
CONSECUENCIAS PARA LOS AFECTADOS DE EB
DEL REAL DECRETO LEY 20/2012
SOBRE LA LEY DE DEPENDENCIA
Colaboradores
Nº de expediente: PSE-010000-2008-007
Last publication
Football Raffle
WINNER NUMBER
140
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Official Football T-Shirts signed
XX Anniversary Logo
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Download our leaflet
Calendar for Respite Home
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Results of the Burquol Study on the cost of the EB for families (In spanish)
This study shows the socio-economic costsand the quality of life of people affected by rare diseases (in spanish)
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