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Forums
Forums
This forum, which is accessible for all, allows people with EB, relatives and carers to post their questions and comments, thus communicating with anyone within the spanish-speaking EB world.
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Last publication
Football Raffle
Only 2 € per ticket
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Official Football T-Shirts signed
XX Anniversary Logo
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Download our leaflet
Calendar for Respite Home
Press here to check availability
Results of the Burquol Study on the cost of the EB for families (In spanish)
This study shows the socio-economic costsand the quality of life of people affected by rare diseases (in spanish)
We need volunteers
Follow us on social networks
www.facebook.com/butterflychildrencharity
©2009 Asociación de Epidermólisis Bullosa de España Aviso Legal
C/ Jacinto Benavente Nº 12 29601 Marbella (Málaga)
Tfno: 952 816 434
FAX: 952 816 434
