The Association has a lot of technical information on the different types and aspects of the disease, such as: Guide of comprehensive clinical assistance of hereditary Epidermolysis bullosa (Published by the Spanish Health Ministry). Includes information on: Etipathogeny and diagnosis. Gastrointestinal and nutritional symptoms. Oral symptoms. Mucous and skin, gastrointestinal, nutritional, stomatologist, surgery and rehabilitating treatments. Research topics about the EB. Ethic considerations. Epidemiology. Disease impact. Guide to care the injuries (daily health care) and prevention plans. Recommendations to use the healing products.

 

Guide to heal neonates (Debra Spain)

This guide has been produced by the social and health care staff of the association with useful information to help the parents and their relatives for the first care of the newborns affected by EB.

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Information on the Types of genetic heredity  

Information on the education of children affected by EB  

Psychologist and social Situation of people affected by EB and their families  

Guide of physiotherapy 

Guide of nutrition

 

If you want to get these guides or further information on the Epidermolysis Bullosa, please send us an email to info@debra.es

Moreover, in English a book has been recently published. It is called “Life with Epidermolysis Bullosa (EB): Etiology, Diagnosis, Multidisciplinary Care and Therapy”. It has been written by Jo-David Fine and Helmut Hintner and published by Springer Wien New Cork (ISBN 978-3-211-79270-4).